Module 2 — Rare diseases: concepts and systems

How rare diseases are managed across health systems: genetics, clinical pathways, therapeutic development and the patient experience. Includes clinical genetics, testing and diagnostics, multidisciplinary care, trial design and the role of advocacy.

16–25 Nov16 November — 25 November 2026

4sessions, Mondays and Wednesdays, 14:00–16:00 CET

Coming soon Soon here we will tell you the most important things that were said in class — the arguments, the numbers and the examples, with the speakers' names and positions.

When

16 Nov
18 Nov
23 Nov
25 Nov

Who teaches

Module leads: Cynthia Tifft, Maria Teresa Acosta

Faculty: Kathy Flynn, Steven Groft, Secundo Mariz, Cynthia Powell, Debra S. Regier, Heidi L. Rehm, Marco Salvatore, Maurizio Scarpa, Kert Viele

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