International cooperation

Connecting rare disease reporting in Russia with the international community.

We welcome dialogue with patient organisations, clinicians, researchers, scientific societies and institutions working on rare and inherited diseases. Our aim is to make relevant evidence and experiences easier to understand across healthcare systems.

Ways to work together

Expert interviews and explanations of research findings.
Reporting on international meetings, educational initiatives and patient advocacy.
Comparative coverage of diagnostic pathways, access to medicines and transition to adult care.
Patient perspectives, with appropriate permissions and careful handling of personal information.

ICORD

ICORD stands for International Collaboration on Rare Diseases and Orphan Drugs. Its work provides an important context for international discussion about rare diseases and orphan medicines.

Genome Inform is discussing opportunities for cooperation with ICORD. A formal partnership has not been announced.

Visit ICORD’s official website ↗

Propose a collaboration

Tell us about your organisation, the topic you would like to discuss and the people or sources available. Please identify any funding, sponsorship or commercial interests relevant to the proposal.

Contact the newsroom

Editorial coverage and cooperation do not imply medical endorsement. Publication decisions remain with the editor-in-chief.