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WHO outlines the route to a global rare disease action plan
WHO has described how a proposed ten-year global action plan on rare diseases will be developed, with consideration by the World Health Assembly planned for 2028.
In its 31 August 2026 update, WHO said a discussion paper was planned for the final quarter of 2026, followed by a first draft in early 2027. The consultation process is intended to include countries, UN agencies and other stakeholders, including people living with rare diseases and their families.
A proposal under development
A revised draft is expected to go through WHO’s Executive Board before consideration by the Assembly in May 2028. The timetable describes preparation and consultation; it does not mean that a final action plan has already been adopted.
Primary sources
Sources checked: 31 October 2026.
